Fibromyalgia and Moving

Fibromyalgia is not quite helpful when you're trying to move. Today at two points I got to the fatigue level that was painful. I've had bright spots on my cheeks since mid afternoon, which is a good sign that  things in my body are not going well.

I plan to take some comfort items with me, pillows, a blanket, etc, tomorrow so that when I need to rest I can, vs having to rest in a painful position. Today I got the keys, utilities on, etc etc, and my dad started paint prep, with hubs helping him finish it up. Tomorrow I hope to clean and start spackling before dad arrives, have at least one room ready to go for paint. But I just can't push myself to do as much as I was able to in the past. This is a really hard thing for me, but I simply cannot work myself out of commission again this week, it will have consequences-pain, mostly, fatigue for days. I had to rest most of yesterday and the prior day because I guess I packed too much on Sunday. We got a lot accomplished, but the consequence of doing too much was two days' rest. Not good. I need to really be careful.

I did get my hip shots yesterday. The soreness is definitely still present, but the normal ache is mostly gone. It will be interesting to see how I am once the soreness wears off.

Muscle relaxer and bed, that is the rx for tonight!

Moving Day is Coming

We signed a lease on a new house today. I'm very excited about moving and about how the new house will be, but the thought of the process of moving has me scared. I don't have the energy for normal activities, much less something this stressful/tons of work! Yay for us, this will be the first place we've moved together into, and I'm very excited about that.

My tentative plan is to pack my arts/crafts supplies first, then books, then clothes, toiletries etc, then kitchen. These are my main categories of items. For some reason my keepsakes are chunked in with art/craft supplies. Funny how that works.

I have a splitting headache right now. I've done everything I can for it-including having gone to the chiro. Maybe I should go to the pain clinic tomorrow for the headache shots. Just thought of that. Could be a good thing!

Fibromyalgia Pain

I had my appointment at the pain clinic Monday. Apparently I do actually have something wrong with my hips - bursae - and will get cortisone shots in them next week. Good to have part of the pain resolved but there is still just so much of my body that hurts, all the time. I'm kind of at my wits end. Fibromyalgia has got to be one of the most misunderstood and under treated disorders out there. How can someone be in so much pain, and yet, nothing really to be done about it.

The more time that goes by, the more I am convinced that a dramatic lifestyle change is needed. I am thinking about going gfcfsf. Gluten free, casein free, sugar free. I feel like this trio will be incredibly difficult to maintain...but what if it works?

Off to Sister's House Today

I'm looking forward to seeing my sister and nephews, but not looking forward to the pain that is possible this evening. My nephew is in a play tonight, that starts at 7-I'm generally shut down by that time! And after a car ride.... Man, I'm afraid, this could be bad. Hopefully the weather at least stays stable through the trip, if a front moves in, it will be pure misery. But, there's always the chance it will be ok, and I do get to sleep on my sister's comfy couch, so that's some good!

Heart Quiltie, and hope on the horizon

Heart Quiltie, Approx 12" sq, Cotton
Hand embroidery, and hand quilting

I'm totally loving the hand embroidery and quilting lately, it is relaxing and making me happpeeeee with the finished products. The Heart Quiltie is #2, I did a pig first that went to my MIL, then the heart, now a house and tree. I love the simplistic imagery and texture, and colors. I am working with a limited palette of colors and fabrics, which in general tends to let me create better work. Funny how that happens!

In other news, I have a pain clinic appointment on Monday morning, bright and early. I hope hope hope they can help me, and don't turn me away for some stupid reason. I know some clinics would, for how I've been managing the pain so far, but until there's another plan in place, I can't stop the other thing. It is what it is, and I hope they understand.

I hope they can help me, really truly, and do more than simply shove high powered pills down my throat, though, at this point that is help, too.

Quilting Therapy

I'm hand quilting. This is a very strange thing for me to be doing, but its very calming and therapeutic. The piece also involves hand embroidery, which is also big for me right now. Hand stitching in general. I was knitting with a little crochet on the side until about 6 weeks ago, and abruptly became disinterested in it, due to depression probably. The hand sewing is a little stressful on my hands, but just because I didn't do much with them for about a month, I think. And it uses different little muscles.

The pain level right now is low. I woke up several times in pain overnight, and this morning my leg was hurting pretty bad, but I'm doing ok right now. Getting ready to call the pain clinic and see if they got my referral yet-and what the status is. I hope they take me as a patient, I'm not sure what I'll do next if they don't. Something's got to give!

Karina Hansen, Denmark

http://dxrevisionwatch.com/2013/05/11/something-rotten-in-the-state-of-denmark-karina-hansens-story/

This story has made me physically ill, sick to my stomach, and very upset. This woman was taken from her home, with police force, for which no reason was given. She is now stuck in a hospital not equipped to care for her, receiving care she is forced to accept, including psychiatric care. This is SICK.

I am so upset about this I need to sort out my thoughts before I can write them!